From the moment YOUth researchers started gathering data, there has been a need for data management. Now there is a data management plan. The plan gives researchers guidance. And the parents of the children taking part in the research now know that the YOUth project is taking the safe storage of their data seriously.
YOUth is a large scale study following 6000 children in their development from embryo until early adulthood. Their research data contains a biobank with human bodily material, hours and hours of videos, images from the MRI scanner, completed questionnaires, ultrasounds and IQ scores. These are just a few examples of the data that researchers collect for the YOUth survey. And then there’s the huge quantity of administrative data from the thousands of participating children and their parents, which is cleverly packaged in pseudo-codes in order to protect their privacy. All this data is necessary for the research: YOUth researches how child-specific factors and the environment influence the behaviour of children and the role their brain development plays in this. The children are followed for many years.